World Lupus Day: Lupus Awareness Month

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Posted May 10th, 2019 in Health & Wellbeing

World Lupus Day: Lupus Awareness Month

Each year, May 10 marks World Lupus Day to raise awareness about  a serious disease that requires in-depth understanding and support for each person who has been affected. A survey by the Lupus Foundation found that pain (65%), lifestyle changes (61%), and emotional problems associated with Lupus (50%) are the most difficult parts of coping with Lupus. An understanding and supportive network is key to living with Lupus. It is important for all of us to take the time to learn more about Lupus because together we can fight it and do whatever it takes to help each affected person.  Take a moment to learn more about Lupus and how important the role of caregivers can be.

Lupus is  a chronic (long term) autoimmune disease that can affect different parts of the body. Autoimmune means that your immune system attacks healthy tissue, most commonly with Lupus the skin, joints and internal organs. It can develop without warning and for the moment there is no known cause or cure for Lupus. As a result it’s difficult to diagnose (there is no single test) and it can often take a long time for a doctor to collect all the information needed to diagnose Lupus.

What is the treatment for Lupus?

This is an ongoing lifelong process, but it’s not impossible. Treatment for Lupus depends on your signs and symptoms but it should always be treated by your doctor. Even without a known cure, there is still much that you can do to manage the symptoms and improve your quality of life. You and your care team should stay up to date on the latest developments with Lupus treatments to ensure you have the best possible care plan.

How important is the role of caregivers with this disease?

Caregiver support may become  essential  when a person with Lupus develops serious health issues and can no longer function independently. Because each Lupus diagnosis is so unique, care needs and responsibilities will differ.  Family and friends can help but may be limited by the amount of time and expertise required. A professional  caregiver can provide the necessary help required and ease the burden on your family network. Skilled and compassionate caregivers can help you have the best quality of life possible, while family members get the peace of mind of knowing their loved ones are safe and cared for when they cannot be there.

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